What?
OIVillage is a social networking web site similar to
Myspace or
Facebook for those that have Osteogenesis Imperfecta, their families, and friends.
Osteogenesis imperfecta (OI) is a genetic disorder characterized by bones that break easily, often from little or no apparent cause.
More information on OI.
Why?
While medical research, treatment, and therapies are often discussed heavily with in the context of OI, social development and interaction is often times left out of the dialog. This site provides the means necessary for people affected by OI to meet, and take part in a growing online OI community.
How?
This web site is the creation of
Joe Hall and produced by his company
JOZSOFT. Joe has OI himself and is a web developer, writer, marketer, and artist that has worked on both the national and local levels around a variety of diverse topics and technologies. Most of his work has been focused on developing the tools needed for small businesses and nonprofits to become empowered on the internet. Describing him self as "web-head", Joe, engages the internet with a passion and desire to bring change and new opportunities to his clients and users.