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Social Networking for people affected by Osteogenesis Imperfecta.

Joe

Last Updated:
Wed 16 Apr 2008, 22:40:08


Gender: Male
Status: Single
Age: 29 Years
City:Pawleys Island
State: SC
Country: United States


Posted On: 04/16/2008

The birth of OIVillage
Current mood:

One weekend while I was still in college I was hanging out with a friend of mine. He was browsing myspace on my computer and stumbled upon one of the many myspace groups that I belonged to. Next thing I hear is, “Hey man, all these people look like you!” When I looked at the screen I said, “that’s because they all have OI” “OI? Whats OI?” OI stands for Osteogenesis Imperfecta – a rare bone disorder that causes bones to fracture easily some times for no apparent reason. One of the common characteristics of folks with OI are similar facial features and blue sclera (which I have both). As my friend continued to browse he would ask me if I knew any of the people on the site. For the most part I didn’t know anyone on that site, except for maybe a few. This shocked my friend and he asked me, “Well, why don’t you know them?” My response was, “Well, its not like we all come from the same village!” And, then I thought, “but that would be cool!”

Years past and I graduated college with a degree in Political Science. While I looked for an avenue to start my career I began developing web sites for non-profits and small businesses. What started as a small part time way to make extra money, developed into a real business with clients from across the country. As time went on, more of my time was devoted to web development, I started to realize the amazing power of the web. A type of power that can transform individuals’ lives. For the first time I wasn’t reading how the internet was changing the world, I was experiencing it first hand!

One of the things that I realized is that the internet not only has the power to bring together lots of people. But it also has the amazing power to bring together groups of people that share a similar life experience but are geographically separated and isolated (like people with OI). Many times it is these types of connections that can be truly transformative.

As a web developer I am naturally creative and am always trying different things. So, when it came time for me to try my hand at developing a social networking portal it only seemed natural for me to develop a site that’s sole intention is to bring people with OI together.

While brainstorming I remembered the conversation I had with my friend in college. Instantly OIVillage was born!

Originally published on web pulp 2.0.

3 Comments - 2 Kudos - Add Comment -


Kala

I love this website! You are an angel for creating it. :)

Posted by Kala on Thu Jun 26, 2008, 13:06
[Reply to this]

liveforyouandnotwhatotherswantyoutobe

great idea and thank you for creating it!

Posted by liveforyouandnotwhatotherswantyoutobe on Thu Apr 17, 2008, 17:04
[Reply to this]

KidShark

Cool idea and a great concept...but you are way sexier than me in a goatee Joe j/k LOL Chad

Posted by KidShark on Thu Apr 17, 2008, 07:04
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